terça-feira, 2 de junho de 2015

International Children's Palliative Care Network - e-bulletin - June 2015

Successful side event held at 68th WHA in Geneva

At the recent World Health Assembly ICPCN was instrumental in staging a very successful side event on children's palliative care attended by two Assistant Director Generals and Dr Margaret Chan, Director General of the WHO.

Children with palliative care needs are some of the most ‘invisible’ patients of the healthcare world. The International Children’s Palliative Care Network (ICPCN) is working hard to change that and took advocacy for the rights of all children with palliative care needs to the highest level when they successfully staged a side event at the 68th World Health Assembly recently held in Geneva, Switzerland on Monday 25 May.

Organised through the Permanent Missions of Panama, Chile, Italy and Spain, the side event, entitled Implementing WHO’s Resolution on Palliative Care: Ensuring Access for Children was attended by over 90 delegates. In addition to opening remarks from two Assistant Director Generals from the World Health Organization (WHO), Dr Oleg Chestnov (ADG Non Communicable Diseases and Mental Health) and Dr Marie-Paule Kieny (ADG Health Systems and Innovation) along with the Panamanian Ambassador who closed the session, there was an unexpected but very welcome appearance by Dr Margaret Chan, Director General of WHO.

Invited to address the gathering, Dr Chan praised all the civil society organisations listed on the programme who had given their support to the event for their continued efforts and advocacy for what she called ‘this very important subject’.

Referring to the WHO resolution on palliative care (WHA67.19) passed at the 67th World Health Assembly in 2014, Dr Chan said, “We are very pleased to be able to work with you to get this resolution going. Now the important thing is to implement it and to support countries to continue to do their best for this group of children with special needs.”

Presenters were Joan Marston, Chief Executive of ICPCN, Dr Anna Garchakova, Director of the Belarusian Children’s Hospice, Ms Silvia Lefebvre, Director of the Maruzza Foundation in Italy, Dr M. Rajagopal, Chairman and Founder of Pallium India and Prof Anne-Sylvie Ramalet from the International Association for the Study of Pain (IASP).

Each of them spoke with great conviction about the need to provide education to all medical and allied healthcare professionals working with children in issues related to children’s pain and palliative care, for the development of relevant policies and for governmental health departments to find ways to integrate children’s palliative care services into their healthcare systems.

In her presentation Joan Marston quoted new research data from ICPCN revealing the global need for children’s palliative care being as high as 21,6 million, due in part to the high number of children with HIV, with 7,1 million requiring more specialised services. With an average prevalence rate of 44 in 10,000 children the ICPCN believes that presently less than 1% of children can access the palliative care services they require. India has been identified as the country with the greatest need.

The presentation concluded with a moving video interview with Lucy Watts, ICPCN’s first Youth Ambassador, who spoke of her personal experiences in accessing palliative care for children and young adults. She urged policy makers to provide palliative care for everyone in order to improve the quality of life of all who had to live with a life limiting condition.

Visit our website for information on the side event and to download and watch a selection of the presentations.

Upcoming Conferences and Events

The ICPCN website has a Calendar of Events which lists events related to children's palliative care taking place around the world. Contact us to have your event listed on this calendar.
  1. 20-26 June: 8th Annual Pediatric Pain Masterclass 2015  Minnesota, MN, USA  
  2. 8-10 July: 7th International Cardiff Conference on Paediatric Palliative Care  Cardiff, Wales, UK
  3. 27 - 28 August 6th Biannual Palliative Care Association of Uganda Conference
  4. 17 - 20 September European Academy of Paediatrics Congress and MasterCourse 2015
  5. 18 - 20 September 2nd Biennial USANA (United South African Neonatal Association) Conference
  6. 27-30 September HPCA Conference 2015

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